Check out this video posted by Mark Siegel at The 19th Floor about a guy with spinal muscular atrophy.
Certain little things about this guy reminded me of my brother. I almost started to cry.
Wednesday, October 1, 2008
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OK, I watched this video and have a few issues with it. Namely, he doesn't want to be seen as a "supercrip," and I totally understand that. I don't want to be seen as one, either. But then his attendants, friends, boss, etc., all give interviews that totally perpetrate the supercrip mentality. If I asked the people in my life to give interviews about me, I would expect them to request my wishes to portray me as simply a woman who's living her life, who's too smart and ambitious to be hanging out on her mother's couch, who really never considered doing anything else.
The people in this video were too much "oh, I don't know how he does it," blah blah blah.
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